Usher Syndrome Coalition is about connecting the global Usher community. I am one of their ambassadors for the UK.

UsherKidsuk is a charity that support and connects families of children with Usher Syndrome across the UK. They run a summer camp for the children and I am of the mentors at the camp.

Ava’s Voice is an organisation that started the first UshThis Camp in America and their mission is empower youth with Usher syndrome and to educate families and school communities.